Ellie and Tom's Story

In many ways Tom is just like other four-year-old boys, but often it’s his differences that people notice first. In this thought-provoking film, Ellie talks about what it's like to have a brother with Cockayne syndrome.

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Tiana and Star's story

Everyone gets a few bumps and bruises when they’re younger - it’s just part of growing up. But in this film we learn that Tiana, 7, has broken a total of seven or eight bones and her sister Star, 10, has broken thirty-three.

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Max's story

Max has Hypohidrotic Ectodermal Dysplasia (HED), a condition that means he cannot sweat, has no teeth and very little hair.  In this film, Max explains what living with the condition means for him and how it affects his life.

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