In many ways Tom is just like other four-year-old boys, but often it’s his differences that people notice first. In this thought-provoking film, Ellie talks about what it's like to have a brother with Cockayne syndrome.
Everyone gets a few bumps and bruises when they’re younger - it’s just part of growing up. But in this film we learn that Tiana, 7, has broken a total of seven or eight bones and her sister Star, 10, has broken thirty-three.